"Knowing How To Help" Foundation for Patients Affected by Mucopolysaccharidosis

Fundacja "Umieć Pomagać"

legal form:

foundation

Fields of activities

- charity
- social aid, including families and individuals facing difficult situations, ensuring equal opportunities
- health care and health care promotion
- promoting and organising volunteer work
- others - pomoc na rzecz osób chorych na choroby rzadkie

General information

Dzieci Warszawy 27a lok. 120, 02-495 Warszawa
Polska
as before
601 453 733, 600 244 156
,
Our office is inaccessible for people with mobility problems.

About us

"Knowing How To Help" charitable foundation for patients affected by mucopolysaccharidosis.

Our aims:
- To help and support patients suffering from rare diseases, particularly those affected by mucopolysaccaridosis type I (Hurler, Hurler Scheie, Scheie syndromes), type II (Hunter syndrome), type IV (Morquio syndrome), type VI (Maroteaux- Lamy syndrome) later on called "MPS";
- To initiate and support innovative solutions in the area of modern treatment methods, particularly for MPS;
- Charitable actions including development and reinforcement of attitudes enhancing active participation in civic society;
- Social assistance for patients and their families.